Sunday, July 30, 2006

The little boy no ones want to know

Sedihhhh deh baca kisah si Ryan...ingin nangis rasanya
May peace be upon him
Dibawah ini aku posting testimonial yg di tulis Ryan waktu umur 16 tahun, 3 tahun sebelum dia meninggal dunia

Ryan White Testimonial.
My name is Ryan White. I am sixteen years old. I have hemophilia, and I have AIDS.
When I was three days old, the doctors told my parents I was a severe hemophiliac, meaning my blood does not clot. Lucky for me, there was a product just approved by the Food and Drug Administration. It was called Factor VIII, which contains the clotting agent found in blood.
While I was growing up, I had many bleeds or hemorhages in my joints which make it very painful. Twice a week I would receive injections or IV's of Factor VIII which clotted the blood and then broke it down. A bleed occurs from a broken blood vessel or vein. The blood then had nowhere to go so it would swell up in a joint. You could compare it to trying to pour a quart of milk into a pint-sized container of milk.
The first five to six years of my life were spent in and out of the hospital. All in all I led a pretty normal life. Most recently my battle has been against AIDS and the discrimination surrounding it. On December 17, 1984, I had surgery to remove two inches of my left lung due to pneumonia. After two hours of surgery the doctors told my mother I had AIDS. I contracted AIDS through my Factor VIII which is made from blood. When I came out of surgery, I was on a respirator and had a tube in my left lung. I spent Christmas and the next thirty days in the hospital. A lot of my time was spent searching, thinking and planning my life.
I came face to face with death at thirteen years old. I was diagnosed with AIDS: a killer. Doctors told me I'm not contagious. Given six months to live a being the fighter that I am, I set high goals for myself. It was my decision to live a normal life, go to school, be with my friends, and enjoying day to day activities. It was not going to be easy.
The school I was going to said they had no guidelines for a person with AIDS. The school board, my teachers, and my principal voted to keep me out of the classroom even after the guidelines were set by the I.S.B.H., for fear of someone getting AIDS from me by casual contact. Rumors of sneezing, kissing, tears, sweat, and saliva spreading AIDS caused people to panic.
We began a series of court battles for nine months, while I was attending classes by telephone. Eventually, I won the right to attend school, but the prejudice was still there. Listening to medical facts was not enough. People wanted one hundred percent guarantees. There are no one hundred percent guarantees in life, but concessions were made by Mom and me to help ease the fear. We decided to meet them halfway:
Separate restrooms
No gym
Separate drinking fountains
Disposable eating utensils and trays
Even though we knew AIDS was not spread through casual contact. Nevertheless, parents of twenty students started their own school. They were still not convinced. Because of the lack of education on AIDS, discrimination, fear, panic, and lies surrounded me:
I became the target of Ryan White jokes
Lies about me bitting people
Spitting on vegetables and cookies
Urinating on bathroom walls
Some restaurants threw away my dishes
My school locker was vandalized inside and folders were marked FAG and other obscenities
I was labeled a troublemaker, my mom an unfit mother, and I was not welcome anywhere. People would get up and leave so they would not have to sit anywhere near me. Even at church, people would not shake my hand.
This brought on the news media, TV crews, interviews, and numerous public appearances. I became known as the AIDS boy. I received thousands of letters of support from all around the world, all because I wanted to go to school. Mayor Kock, of New York, was the first public figure to give me support. Entertainers, athletes, and stars started giving me support. I met some of the greatest like Elton John, Greg Louganis, Max Headroom, Alyssa Milano (my teen idol), Lyndon King (Los Angeles Raiders), and Charlie Sheen. All of these plus many more became my friends, but I had very few friends at school. How could these people in the public eye not be afraid of me, but my whole town was?
It was duffucult, at times, to handle; but I tried to ignore the injustice, because I knew the people were wrong. My family and I held no hatred for those people because we realized they were victims of their own ignorance. We had great faith that with patience, understanding, and education, that my family and I could be helpful in changing their minds and attitudes around. Finanncial hardships were rough on us, even though Mom had a good job at G.M. The more I was sick, the more work she had to miss. Bills became impossible to pay. My sister, Andrea, was a championship roller skater who had to sacrifice too. There was no money for her lessons and travel. AIDS can destroy a family if you let it, but hluckily for my sister and me, Mom taught us to keep going. Don't give up, be proud of who you are, and never feel sorry for yourself.
After two and a half years of declining health, two attacks of pneumocystis, shingles, a rare form of whooping cough, and liver problems, I faced fighting chills, fevers, coughing, tiredness, and vomiting. I was very ill and being tutored at home. The desire to move into a bigger house, to avoid living AIDS daily, and a dream to be accepted by a community and school, became possible and a reality with a movie about my life, The Ryan White Story.
My life is better now. At the end of the school year (1986-87), my family and I decided to move to Cicero, Indiana. We did a lot of hoping and praying that the community would welcome us, and they did. For the first time in three years, we feel we have a home, a supportive school, and lots of friends. The communities of Cicero, Atlanta, Arcadia, and Noblesville, Indiana, are now what we call "home." I'm feeling great. I am a normal happy teenager again. I have a learner's permit. I attend sports functions and dances. My studies are important to me. I made the honor role just recently, with 2 A's and 2 B's. I'm just one of the kids, and all because the students at Hamilton Heights High School listened to the facts, educated their parents and themselves, and believed in me.
I believe in myself as I look forward to graduating from Hamilton Heights High School in 1991.
Hamilton Heights High School is proof that AIDS EDUCATION in schools works."

Monday, June 26, 2006

Spicy bean curd


1 package bean curd/tofu, cut in small square and deep fry
3 cloves garlic, sliced
5 cloves shallot, sliced
3 red chili, sliced
1 stalk spring onion
1 teaspoon minced ginger
1 tablespoon dried shrimp, minced
1 teaspoon shrimp paste (terasi)
1 tablespoon sweet soy sauce
1 cup water
1 tablespoon vegetable oil
sugar and salt as needed


Saute sliced garlic, shallot, ginger, dried shrimp and shrimp paste over a medium heat, stir for 1 minute, add sliced red chili stir for another 40 second add fried bean curd.
Stir in soy sauce, sugar, salt and water, simmer for 3 minutes
Add spring onion.

Friday, May 26, 2006

Pearl by Sade


There is a woman in somalia
Scraping for pearls on the roadside
There's a force stronger than nature
Keeps her will alive
That's how she's dying
She's dying to survive
Don't know what she's made of
I would like to be that brave
She cries to the heaven above
There is a stone in my heart
She lives a life she didn't choose
And it hurts like brand-new shoes

Hurts like brand-new shoes

There is a woman in somalia
The sun gives her no mercy
The same sky we lay under
Burns her to the bone
Long as afternoon shaddows
It's gonna take her to get home
Each grain carefully wrapped up
Pearls for her little girl


She cries to the heaven above
There is a stone in my heart
She lives a life she didn't choose
And it hurts like brand-new shoes

This is the way my Mom loves me and my brothers.
She's my real angel and hero (dad too)
I cry sometimes when i hear this song.....
I love you mom and dad...i love u both....if i have to die for you, i will....

Thursday, May 25, 2006

Pineapple Tart

This is an easy-made Indonesian cookies especially for Chrismast or Hari Raya


400 g all purpose flour
300 g butter
50 g icing sugar (optional)
25 g parmesan cheese powder(optional)
3-4 egg yolk
1 extra egg yolk for garnish
2 cup pineapple jam


Beat butter, egg yolk, icing sugar in a high speed for 2 minutes, add in cheese powder beat again for about 1 minute.
Fold in flour and mix well.
Roll the dough and fill with the pineapple jam.
Place on the ungreased baking tray and freeze for 10 minutes
Paint the top of cookies with egg yolk and bake in preheated oven at 180 degrees for about 30 minutes

Another shape of pineapple tart

For homemade pineapple jam, here is the recipe


2 large pineapple
50 g sugar (or more)
1 teaspoon vanilla powder
1 tablespoon butter
50 g pine nut, toasted (optional)
Pinch of salt


Blend pineapple using a food processor
Cook pineapple juice add butter, sugar, salt and vanilla powder
Simmer until almost dry, add pine nut and remove from heat

Sunday, April 23, 2006

A year ago

A year ago... same date as today, i'm lying on the hospital with stiff neck, scratches and blue black all over my body.
The night before, after work at 2 am, i'm "racing" with a friend.
That moment, the road seems very quiet and not even a cat or dog there. Suddenly a car with high speed coming from the opposite and..... that's it.
I still manage to run away before they call police and doesn't really care with a traffic camera on the corner of the road. My motorcycle broken into pieces but thanks to God i still alive.
Year of 2005 is the worst year for me, with 4 accidents.

Saturday, April 22, 2006


I get this picture from Ryo my Japanese friend...2 years ago. Dunno where and how he is now.
God bless him always.

....a little diary of mine Copyright 2009 Fanny Wijaya Designed by Ipiet Templates Edited By Fanny